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A review by ambershelf
How to Tell When We Will Die: On Pain, Disability, and Doom by Johanna Hedva
5.0
ALC from Netgalley
In this incisive essay collection, Hedva expands upon their groundbreaking "Sick Woman Theory" that reframes illness as a social experience. Opposing the definition of care in a capitalist society where giving and taking are tallied, Hedva proposes care as a revolutionary act that builds a community in which one's body is detached from its value to earn profit. I love everything about this book. Hedva holds nothing back in their indictment of our ableism by blending family stories, medical journeys, and cultural criticism. DIE is a paradigm-shifting collection on disability and easily one of my top reads of the year.
In this incisive essay collection, Hedva expands upon their groundbreaking "Sick Woman Theory" that reframes illness as a social experience. Opposing the definition of care in a capitalist society where giving and taking are tallied, Hedva proposes care as a revolutionary act that builds a community in which one's body is detached from its value to earn profit. I love everything about this book. Hedva holds nothing back in their indictment of our ableism by blending family stories, medical journeys, and cultural criticism. DIE is a paradigm-shifting collection on disability and easily one of my top reads of the year.